The Short of It:
Diagnosed in late January with metastatic breast cancer: spine, ribs, pelvis, shoulder blades, spleen, liver. It can be managed but, at this point, not cured. I will have good days and bad days. This is a big mountain I’m climbing with no summit.
Rules of Engagement:
Do not ask me, “How’s YOUR cancer?” (I’m not taking possession of these wayward cells. I’m trying to get RID of them.) DO say, “How’re you doing?” “What are they doing for you?” I’ll give you as much detail as you’d like or no detail at all.
Do not ask me how long I have to live. (I don’t know. IBrance is only 6 years old. )
DON’T say: It’s God’s will. God doesn’t give us more than we can handle.
DO send cards, texts, emails, phone calls.
DO tell me about your trips and adventures.
Be prepared for hearing how shitty I feel and don’t try to fix it. (They keep telling me I’ll feel better.)
DO let me cry if I need to cry. Hugs are welcome.
DO ask if there’s anything you can do. Mostly staying in touch is the best medicine.
I thought I kicked breast cancer 20 years ago with a mastectomy, chemo, and radiation. Apparently, at least one cell survived and has decided to party. I’ve lead a very healthy active life since my initial “cure” and this diagnosis has filled me with shock, sadness, and a bit of anger.
Scans, tests, and a liver biopsy later, I’m on an Estrogen blocker and IBrance, a cell cycle disrupter for E+, Her2 – disseminated breast cancer. I recently had my spine radiated for 2 weeks to remove the ice pick of pain out of my back. Unfortunately, my throat was in the way and now I can hardly eat or drink. Imagine Chernobyl in your esophagus. I’m getting an IV of fluids here as I type.
My doc is wonderful. She remains “optimistic” and says I have years. I want at least 30.
My husband, Rick, says that our failed attempt at Lucy’s Footpass in Kings Canyon last August cannot be my last backpack trip, although there’s a spot in my pelvis where a screw tip for my titanium hip will have to be radiated, and grow new bone first. The Grand Canyon rafting trip is off. Doc doesn’t want me breaking vertebrae in the bottom of the canyon. Darn.
While calls, cards, emails, and texts are my lifeline of connectivity, this will be a good place for current updates and insights on my journey – medically, emotionally, and spiritually. I told God during the initial bout that I was willing to learn ALL the lessons I needed to because I was NOT going to do this again. Well, apparently there is more to learn. Follow along. It’s gonna take a village.