Sun slicing through the windows and splashing onto the bathroom tile and sifting through the ficus leaves to dapple the wall. Silence. Rick is at the cabin doing some winterizing. Abby is sleeping by my side.
Me? I have a newly rising CA 15-1 cancer marker and growing pains behind my lower ribs, especially on the right side. My glucose was 133 before my PET scan last Wed. Mine’s usually 90. My pancreas? Crap. I know too much medical shit. And yes, I can feel the tumor in my throat when I swallow. I REALLY don’t want to get that radiated again: pure HELL. I’m awaiting my PET scan results. I’m afraid I’m slowly dying. Dramatic? I can’t tell. I could be hit by a bus tomorrow.
Abby is over 12 years old. She’s having difficulty getting her rear end up on the couch or on the bed or into the car. I only walk her our one-mile walk in the neighborhood now – no eight-mile hikes in Briones like last year. Heck I’ve only maxed out at seven myself this year, not counting the eight mile Burma Burn I did with friends on Diablo in early January before I knew. I watch Abby slow down and wonder which of us will witness the loss of the other. I don’t want either. Her nose is at my thigh and her big furry paw on my knee as she sleeps with my left hand on her head. How I love this dog.
I’m wondering at the importance of activities I’m doing in my daily life. Not knowing when any of us will pass, I’ve always questioned how I spend my time. I’m cleaning out, sorting, and repositioning stuff in my sewing room/office. It feels like I’m getting ready to start a project, or leave it all in good order – good order that probably no one else cares about. It feels important and useless at the same time, like in the movie Love Story when she’s dying and can’t remember the music she used to know. He doesn’t care. She does. Does anything really matter? Except if it helps others, feels rewarding, or is fun? I planted new plants yesterday for Fall/Winter/Spring wondering if I’ll be here to enjoy them or if they’ll only be a temporary reminder that I was here.
I’ve always really loved being alive – witnessing the changing light and soaking in the darkness, the stillness, the little things, the twit of birds and bugs, the glint of light on hard surfaces, the smell of pork chops frying and banana bread baking, Josh Groban singing, the way my body feels making its way across the land legs and lungs pumping, black dog noses, salty ocean water, sun on my skin, laughter. And now Covid limits my movements and meetings. Will I live long enough to see the days post-Covid? When we can eat and drink at a restaurant with friends, hike with friends, travel at will, float in the Costa Sur lagoon, feel the hot Puerto Vallarta sun on my skin, hug my grandchildren, hug my friends?
Abby runs in her sleep. I awoke with a dream: I was doing something and got distracted by the cry of a baby – a tiny baby, so small it fit in the closed compartment of “Sunday” in a weekly pill container. I lifted the lid and remembered that I had a baby. How long has it been in there? What’s it doing in there? Can I be so irresponsible that I’ve forgotten that I have a baby? It’s impossibly small – a half inch in diameter. I see never-opened eyes and tiny blue veins. It fits like a small walnut in the palm of my hand looking like a just-hatched bird. Do I take it to the hospital and thereby incriminate myself with neglect? Will it survive? How did I let this happen? Suddenly its mouth opens and it starts rooting for a breast. It grows into the size of a newborn and I tuck it under my shirt to feed. Do I even have any milk? How did I let this happen and screw this up? This that is so important? I awake feeling terrible guilt.
I was reeling a bit from an acquaintance’s response to my cancer diagnosis: As long as my treatment wasn’t too bad and I was alive, I should be ok with it. He could not accept that my life style change was a huge loss for me: “Well, we’re all going to slow down, eventually.” “I’m not ready,” I said. Rick piped up, “She doesn’t have to like it.” “And I don’t,” I said. He looked away and shook his body as if to say that what I liked and didn’t like wasn’t important if I was still breathing. I know that basically, he can’t handle the whole idea. I’m living the idea. It’s sad, humbling, grievous beyond words. I can’t believe I’m in this position. People on Facebook ask questions about backpacking the John Muir Trail and I know all the answers. I just can’t DO them. And how can I live these precious days to my best advantage while being so sad? I think I’m getting beyond shock and anger and moving into acceptance and sadness. After many phone calls, I had to accept on Friday that I wasn’t getting my PET scan results before the weekend. I have no patience, never have – perhaps born of early neglect? Sometimes I feel like a hungry baby clawing the cold metal rails for a teat, to be held, to be seen, to have my wide eyes looked into by someone who wants to see who’s behind them.
Footnote: After the May PET scan results showed 75% decrease in the cancer and I backpacked four short trips this summer, I got the results of the PET scan done last Wednesday. It shows “progression,” a fancy way of saying that it’s growing again, even with the treatment. Insert expletive here. But a new drug is in my future. The journey continues.